Please go to Change.org and sign the petition to get Austin McNary the drug Eteplirsen for his Duchene muscular dystrophy.
Austin’s brother Max, 11, has been in a clinical trial for the drug for almost two years and is doing great. Meanwhile Austin, 14, is dying.
This is the petition site: http://www.change.org/petitions/fda-please-approve-the-medicine-my-boys-need-to-survive-both-of-my-sons-deserve-to-live.
If this link doesn’t work, if you Google “McNary petition,” it will come up.
I sign these petitions all the time and don’t blog about them, but this one just grabbed me by the throat.
A Republican State Senator from Oklahoma, Ralph Shortey, introduced a bill “prohibiting the sale or manufacture of food or products which contain aborted human fetuses.”
Comment from the federal Food and Drug Administration — “FDA is not aware of this particular concern.”