Please Help!

Please go to Change.org and sign the petition to get Austin McNary the drug Eteplirsen for his Duchene muscular dystrophy.

Austin’s brother Max, 11, has been in a clinical trial for the drug for almost two years and is doing great.  Meanwhile Austin, 14, is dying.

This is the petition site:  http://www.change.org/petitions/fda-please-approve-the-medicine-my-boys-need-to-survive-both-of-my-sons-deserve-to-live.

If this link doesn’t work, if you Google “McNary petition,” it will come up.

I sign these petitions all the time and don’t blog about them, but this one just grabbed me by the throat.

Where Are the Pro-Life People on This?

In 2009, Herbert and Catherine Schaible’s two-year-old son died of pneumonia because they belong to a Christian Fundamentalist church that believes only in faith healing.

They were given ten years’ probation in his death.

You can guess what just happened.  Yes, now their eight-month-old baby has died after being very sick and getting lots of prayers, but no medical help.

Look, if they don’t want to see a doctor for themselves, they can pray themselves to death as far as I’m concerned.  But when it comes to their minor children, they don’t have that right.

I think of the parents in Africa or Latin America who would cut off their right arm to get their baby some medical help and none is available to them, while these morons refuse to drive to the ER.

Maybe we need a little more state, and a little less church, to protect our children.

 

My Yellow Brick Road

I would be heartbroken if yesterday’s bombing had happened in Boise or Birmingham.  But to have it happen in Boston is like breaking my heart and then stomping on it.

I grew up believing that I was incredibly lucky to be born an American and especially to be born a Bostonian.

If you were a bookish child in the 50’s and 60’s, especially a girl, Boston was a welcoming place to be.  Give us your near-sighted, your uncoordinated, your always-picked-last-for-sports…

I grew up not just in Boston, but in Dorchester, where Martin Richard was from.  It didn’t matter that I was poor because I knew that when I grew up, I would never again live in an apartment like my parents’.

When I passed through the doors of the Boston Public Library in Copley Square, where I spent many Saturdays between 7th and 12th grades, I wasn’t just  on my way to whatever research I was doing that day, I was on my way to my future life.   Boylston Street was my yellow brick road.

At the library, I did the research and analysis and writing that didn’t just get me into Wellesley and then Yale when it went co-ed, but also made it easy to excel once I got there.  I was a student at Girls’ Latin School, but I became a scholar at that library,  learning to use and value original sources, learning to think critically and draw my own conclusions.

To see death and blood and severed limbs right outside my library, this home to all the wisdom men and women have achieved, this sanctuary where the poorest of the city can enjoy the same resources as the richest, is unbearable to me.  My brain and body ache.

The NRA Has Already Won

Oh, big whup — the debate on gun reform is going to proceed after a GOP filibuster attempt was defeated 68-31.  And shame on you, Mark Begich of Alaska and Mark Pryor of Arkansas for voting with the GOP.  That special circle in hell for cowards awaits.

Nothing like walking by your dead child’s room and thinking, “What a great victory to stop that filibuster.”

So we’ll get a debate on gun reform, we’ll get votes on gun reform, we just won’t get any real gun reform.

Broader background checks?  Sure, a good thing if the Manchin-Toomey deal passes.  But we need to deal with the semi-automatic weapons and large ammo clips, and that ain’t gonna happen.  More dead kids?  That’s definitely gonna happen.

The Epidemic of ADHD Diagnoses

How can this be?

Almost one in five of American high school boys is being diagnosed with ADHD.  In the South, it’s almost one in four.

Children on Medicaid are diagnosed at rates about one-third higher than those who are not.

Taking ADHD medication can result in drug addiction and even psychosis.

Diagnoses have gone up more than 50% in the last decade.

Something is disturbingly, dangerously wrong here.  And I think it’s with our parents, schools, and doctors, not with our children.

For more see “More Diagnoses of Hyperactivity Causing Concern,” Alan Schwarz and Sarah Cohen, NYT

Fathers and Sons

From “Study of Men’s Falling Income Cites Single Parents,” Binyamin Appelbaum, NYT:

“The decline of two-parent households may be a significant reason for the divergent fortunes of male workers, whose earnings generally declined in recent decades, and female workers, whose earnings generally increased, a prominent labor economist argues in a new survey of existing research.

“David H. Autor, a professor at the Massachusetts Institute of Technology, says that the difference between men and women, at least in part, may have roots in childhood. Only 63 percent of children lived in a household with two parents in 2010, down from 82 percent in 1970. The single parents raising the rest of those children are predominantly female. And there is growing evidence that sons raised by single mothers ‘appear to fare particularly poorly,’ Professor Autor wrote in an analysis for Third Way, a center-left policy research organization.

“In this telling, the economic struggles of male workers are both a cause and an effect of the breakdown of traditional households. Men who are less successful are less attractive as partners, so some women are choosing to raise children by themselves, in turn often producing sons who are less successful and attractive as partners.

“’A vicious cycle may ensue,’ wrote Professor Autor and his co-author, Melanie Wasserman, a graduate student, ‘with the poor economic prospects of less educated males creating differentially large disadvantages for their sons, thus potentially reinforcing the development of the gender gap in the next generation.’

“The fall of men in the workplace is widely regarded by economists as one of the nation’s most important and puzzling trends. While men, on average, still earn more than women, the gap between them has narrowed considerably, particularly among more recent entrants to the labor force.

“For all Americans, it has become much harder to make a living without a college degree, for intertwined reasons including foreign competition, advancements in technology and the decline of unions. Over the same period, the earnings of college graduates have increased. Women have responded exactly as economists would have predicted, by going to college in record numbers. Men, mysteriously, have not.

“Among people who were 35 years old in 2010, for example, women were 17 percent more likely to have attended college, and 23 percent more likely to hold an undergraduate degree.”

Having raised a son in a two-parent household, this theory makes sense to me on a gut level.  I was the one who made sure my son had the latest video game he wanted, my husband was the one who made sure he did his homework.

Paranoid Fringe 1, Newtown Children 0

Crazies in and out of Congress are threatening to impeach President Obama over his executive actions on guns.

Yes, those actions are very scary.

For example, he is going to nominate a director for the ATF.

He’s going to begin a conversation about mental health.

He’s going to begin a campaign to emphasize safe and responsible gun ownership.

He’s going to clarify what mental health services Medicaid must provide.

He’s going to offer additional training for active shooter situations.

Nominations and conversations and campaigns and clarifications and training, oh my!

All of the executive actions he outlined today are pretty wimpy and none of them can be interpreted as taking away anyone’s Second Amendment rights.

All the big stuff, the meaningful stuff is going to Congress, and it looks as if we may get better background checks, but we won’t get a ban on assault weapons or large ammo clips.

I can’t believe that this moment is going to slip away, but now I think it is.  And if Sandy Hook doesn’t get us to act, I have no idea what will.

It’s awful enough that those beautiful children and brave teachers died.  Even worse is that they will have died in vain.  Even worse is that the paranoid fringe is going to win.

Thanks, Morons

Thank you to the morons who don’t get their children vaccinated for making this the worst year for whooping cough in the U. S. since 1955.

Since you all seem to think life is better without these vaccines, why don’t you go live in the third world and let the rest of us — and our children — enjoys the benefits of twenty-first century life?